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“Shut Up & Cure ALS” – Day 7

Today is my last day of silence.  I am definitely looking forward to talking tomorrow.  This week has been difficult.  Not difficult with physically not talking, but just the strained social interaction with others.  Even with all the love & support coming in from you all, I still felt disconnected and alone. Since ALS limits…

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“Shut Up & Cure ALS” – Day 6

YES, I am still SILENT!  I’m starting to wonder if I will even be able to talk on Sunday morning.  What a strange feeling.  Last night I went to a comedy club and that was very tough!  I noticed I slapped my leg a lot, instead of laughing out loud.  This week I’ve been reminiscing…

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“Shut Up & Cure ALS” – Day 5

Day 5 of SILENCE.  I think the boys in my house are liking my silence way too much.  As I feel more left out and alone, they seem to be quite happy.  Ha.  What I really miss about talking is being involved in a conversation and being able to share a thought as soon as…

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“Shut Up & Cure ALS” – Day 4

It’s hump day and that means, I only have 3 more days of silence!  Remembering to stay silent has not been a problem. It’s just completely frustrating.  When I need to communicate, my family is telling me they can’t read my lips. I actually looked in the mirror and “mouthed” something to myself to see…

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“Shut Up & Cure ALS” – Day 3

I am so happy that you all have agreed to “Speak Up & Cure ALS” while I have remained silent.  After 3 days of not talking, I realize how tough this really is. If it wasn’t for raising awareness, I don’t think I could continue.   Let me tell ya, not talking is no fun!  I…

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“Shut Up & Cure ALS” – Day 2

Today has been quiet. ????  The week definitely seems like it’s moving slower with me not talking.  All day today, I kept thinking it was Tuesday.  I’ve been completely silent all day, even with going out to meet my Dad in the therapy pool and the grocery store.  I ordered turkey from the deli by…

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“Shut Up & Cure ALS” Week of Silence Intro

“During my “Shut up & Cure ALS” Week – I am not talking for an entire week …Yep, 7 days, 168 hours,  10,080 minutes.   I’ve had ALS for 12 years & I’m lucky to still have the ability to speak.  So why am I going silent???”   For the past 12 years our family has…

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“Shut Up & Cure ALS” – Day 1

Well I started my “Shut Up & Cure ALS” week of silence exactly at midnight last night.  I think from midnight to 1:00 a.m. was the toughest.  Something about NOT being able to do something,  makes you want to do it more.  Maybe it’s the “Lopez” rebel inside me.  Ha.  I was so afraid I…

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